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 15th December 2018
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Services & Organizations

SERVICES & ORGANIZATIONS

Chana – Supporting people regarding concerns about their reproductive health
www.chana.org.uk

Norwood – Provides support for children and families in need
www.norwood.org.uk

Verity – Offers information and support regarding Polycystic Ovary Syndrome (PCOS)
www.verity-pcos.org.uk

Endometriosis UK – Supports women dealing with Endometriosis
www.endometriosis-uk.org

Miyad – Helpline staffed by volunteers
www.jewishhelpline.co.uk

Screening

 Information on Screening

What is carrier screening and why should it be done?

 

Jewish Genetic Testing for Rare Disorders: pros and cons

 

Why should I consider getting tested for other Jewish genetic disorders?

There are a number of serious genetic conditions other than Tay-Sachs that are relatively more common among Ashkenazi Jews. Some of the disorders are similar in frequency to Tay-Sachs and the vast majority are severe and life limiting. Although many are very rare, every Ashkenazi Jew has a 1 in 5 chance of being a carrier of at least one of the main Jewish genetic disorders.

It is now possible to have a DNA carrier test for a number of other serious Jewish genetic conditions that would identify if you are at increased risk of passing them on to your children. This knowledge would enable couples who are both carriers of the same disorder to understand the risks and consider the options available to prevent the condition being passed on.

 

Other Screening Options

 

Guy’s and St Thomas’ Hospital

Within the framework of the existing walk-in clinic, Guy’s and St Thomas’ Hospital are now piloting a new self-funded (private) service that tests for 9 recessive disorders – including Tay-Sachs. Details about this service can be found on their website or by phoning the clinic, or on the ‘take the test’ link on our website.

 

Genetics Clinic, 7th Floor Borough Wing, Guy’s Hospital, Great Maze Pond, London SE1 9RT. Telephone: 020 7188 1364

 

In addition to the pilot service at Guy’s Hospital, there are a number of other private testing options that cover a range of Jewish genetic disorders.

Inclusion of these private options does not represent an endorsement of their services.

 

Dor Yeshorim

Dor Yeshorim is an international genetic screening organisation established within the Orthodox Jewish community to prevent Jewish genetic disorders. They offer testing for 9 recessive disorders (plus Gaucher Disease on request) to unmarried, previously un-tested individuals who intend to find a spouse by arranged marriage. Results are not supplied but a PIN number is given and checked against that of a potential spouse to assess compatibility. Local centres in the UK can be contacted without referral to find out details of their private screening.

USA Telephone: 001 718 384 2332

 

The Doctor’s Laboratory (TDL)

TDL is the largest independent provider of clinical laboratory diagnostic services in the UK. It offers testing for 9 recessive Ashkenazi Jewish genetic disorders (plus Gaucher disease and other on request and at extra cost). The private screening service is available to anyone and results are given directly to the individuals being tested.

Tel: 020 7307 7373      
E:mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

 

This is my: Health screening and ultrasound centre

This commercial company, previously the Leeds Screening Centre, offers a wide range of health screening and ultrasound imaging facilities direct to the public. Their Alef8 genetic screening service provides a DNA test for 8 recessive genetic disorders that are of particular relevance to Ashkenazi Jews.  Tel: 0845 272 9999    

           

HPV Vaccine

HPV VACCINE

 

For information about the HPV vaccine and to discuss it's implications please call the Well Teen Helpline on 02082017101

 

Contact Us

Email
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Phone
020 8201 7101
Address
23 Ravenshurst Ave, London, NW4 4EE

Community Services

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